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<!DOCTYPE html>
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<h2>2018 Community Election Candidates</h2>
<p>
Each year, one seat in the Open Humans Foundation Board of
Directors is filled by the vote of your member community! 2018 is
our first year with this new format. A Director of the organization
serves for three years, and the board is the highest level of
governance in the organization.
</p>
<p>
Candidate information is listed below. If you are an Open Humans
member, please check your email for a link to the voting form.
</p>
<ul>
<li><a href="#alexander-sasha-wait-zaranek">Alexander (Sasha) Wait Zaranek</a></li>
<li><a href="#chris-gorgolewski">Chris Gorgolewski</a></li>
<li><a href="#dana-m-lewis">Dana M. Lewis</a></li>
<li><a href="#embriette-hyde">Embriette Hyde</a></li>
<li><a href="#james-m-turner">James M. Turner</a></li>
<li><a href="#katarzyna-wac">Katarzyna Wac</a></li>
<li><a href="#richard-sprague">Richard Sprague</a></li>
</ul>
<hr>
</div>
<div class="col-xs-12 anchor-offset" id="alexander-sasha-wait-zaranek">
<h3>Alexander (Sasha) Wait Zaranek</h3>
<img src="/images/2018-community-candidates/alexander-sasha-wait-zaranek.jpg"
style="float:right;width:250px;padding-left:25px;padding-bottom:25px;max-width:45%;">
<h4>Public statement</h4>
<p>
I am head of quantified biology at Veritas Genetics, the first
company to introduce whole genome sequencing and interpretation to
consumers and their physicians for under $1,000. My current
research is focused on the delivery of real-time, biomedical
insights from massive data sets, spanning millions of individuals
across collaborating organizations, eventually encompassing
exabytes of data. I am also a co-founder of the Harvard Personal
Genome Project.
</p>
<p>
My hope is that Open Humans becomes a central, global hub for
participatory research and participant led data sharing much as
Wikipedia has become a hub for sharing facts. Specifically, I will
use my relationships with the Global Alliance for Genomics and
Health (GA4GH), the NIH data commons pilot, the NIST "Genome In a
Bottle" reference material consortium, and the global Personal
Genome Project (PGP) organizations to further the integration of
Open Humans with other local, national and international biomedical
data sharing efforts.
</p>
<h4>Links</h4>
<ul>
<li>Twitter: <a href="https://www.twitter.com/wait_sasha">https://www.twitter.com/wait_sasha</a></li>
<li>Google Scholar: <a href="https://scholar.google.com/citations?user=Ifj9cY0AAAAJ&hl=en">https://scholar.google.com/citations?user=Ifj9cY0AAAAJ&hl=en</a></li>
<li>Orcid: <a href="https://orcid.org/0000-0002-0415-9655">https://orcid.org/0000-0002-0415-9655</a></li>
<li>Open Humans: <a href="https://www.openhumans.org/member/awz/">https://www.openhumans.org/member/awz/</a></li>
</ul>
<h4>Contributions to Open Humans</h4>
<p>
I have worked with Mad Price Ball as an informal adviser on Open
Humans since its inception. (We are both Harvard Biophysics and
George Church lab alum.) I also helped create the link between
Harvard PGP and Open Humans that allows Harvard PGP participants
to export data to OH and have used this link to export my own data.
Currently, I am deeply involved in standards efforts that will
enable many more projects to empower and encourage their
participants to share their data via OH cf. GA4GH.
</p>
<h4>Competing Interests Statement</h4>
<p>
I hold stock and stock options and am an employee/contractor of
Veritas Genetics Inc., Curoverse Innovations, Inc. d/b/a Curoverse
Research. I am an active member of the Harvard Personal Genome Project
staff.
</p>
<hr>
</div>
<div class="col-xs-12 anchor-offset" id="chris-gorgolewski">
<h3>Chris Gorgolewski</h3>
<img src="/images/chris-gorgolewski.png"
style="float:right;width:250px;padding-left:25px;padding-bottom:25px;max-width:45%;">
<h4>Public statement</h4>
<p>
My life's mission is to accelerate the progress of science by
making as much data accessible to as many researchers as possible.
Most of my work has focused on brain imaging data. I built a
platform for sharing results of neuroimaging experiments
(<a href="https://NeuroVault.org">https://NeuroVault.org</a>), as
well as one for sharing raw neuroimaging data
(<a href="https://OpenNeuro.org">https://OpenNeuro.org</a> - formerly known as
OpenfMRI). I have also been promoting ethical data sharing by
providing ready to use text for participant content forms
(<a href="https://open-brain-consent.readthedocs.io/en/latest/ultimate.html">http://open-brain-consent.readthedocs.io/en/latest/ultimate.html</a>).
I would work with the Open Humans Foundation to help integrate it
with existing open neuroimaging databases and getting their
participants involved in additional follow-up data collection
via the Open Humans platform.
</p>
<h4>Links</h4>
<ul>
<li><a href="https://chrisgorgolewski.org">http://chrisgorgolewski.org</a></li>
<li><a href="https://twitter.com/ChrisFiloG">https://twitter.com/ChrisFiloG</a></li>
<li><a href="https://github.com/chrisfilo">https://github.com/chrisfilo</a></li>
<li><a href="https://www.openhumans.org/member/filo/">https://www.openhumans.org/member/filo/</a></li>
</ul>
<h4>Contributions to Open Humans</h4>
<p>
I have contributed my data. I have shared my 23andme data on
OpenSNP before it became part of Open Humans. More recently I
shared my Twitter data via TwArxiv project. You can explore my
profile at <a href="https://www.openhumans.org/member/filo/">https://www.openhumans.org/member/filo/</a>
</p>
<h4>Competing Interests Statement</h4>
<p>
I am not aware of any competing interests for this position.
</p>
<hr>
</div>
<div class="col-xs-12 anchor-offset" id="dana-m-lewis">
<h3>Dana M. Lewis</h3>
<img src="/images/dana-m-lewis.jpg"
style="float:right;width:250px;padding-left:25px;padding-bottom:25px;max-width:45%;">
<h4>Public statement</h4>
<p>
I am passionate about open source and open science efforts.
I'm one of the creators and the first users of an open source
artificial pancreas (e.g. hybrid closed loop) system to make
life with type 1 diabetes easier. My skillset ranges from
non-traditional technical skills to communication and
strategy. I’m dedicated to taking what we’ve learned in the
diabetes community & sharing these lessons learned with
all communities. To that end, I’m also a RWJF grant-funded
principal investigator, studying the processes of patient-driven
and patient-led innovation research, with goals around scaling
effective processes and collaborations between traditional and
'new' stakeholders. I’ve used OpenHumans for ~2 years now, and
believe it plays an integral role in enabling individuals to
share data and facilitate new research efforts. My vision is to
help support and scale the organization to continue to meet the
needs of these new stakeholders and communities.
</p>
<h4>Links</h4>
<ul>
<li><a href="https://twitter.com/danamlewis">https://twitter.com/danamlewis</a></li>
<li><a href="https://github.com/danamlewis/OpenHumansDataTools">Repository
of tools developed for working with OpenHumans data</a></li>
<li><a href="https://diyps.org/2017/02/12/making-it-possible-for-researchers-to-work-with-openaps-or-general-nightscout-data-and-creating-a-complex-json-to-csv-command-line-tool-that-works-with-unknown-schema/">Why
I’m building tools to work with OpenHumans</a></li>
<li>Dana's blog: <a href="https://DIYPS.org">http://www.DIYPS.org</a></li>
<li><a href="https://OpenAPS.org">Open Source Artificial
Pancreas System (OpenAPS) movement</a></li>
</ul>
<h4>Contributions to Open Humans</h4>
<p>
I am a user of Open Humans to share my own data and contribute
to research. I also developed 2 projects (Nightscout Data
Commons, OpenAPS Data Commons) and serve as the volunteer
community project administrator. I work to facilitate new
research efforts to analyze diabetes data with dozens of
researchers as a result of Open Humans data being available.
I developed several open source scripts and tools to help
facilitate researchers to be able to use rich, complex data
sets donated by our communities (several scripts are
multipurpose and can be used with other Open Humans data as
well).
</p>
<h4>Competing Interests Statement</h4>
<p>
I consider myself to be friends with the Executive Director of
Open Humans. Financially/professionally,
<a href="https://diyps.org/2017/09/15/opening-pathways-for-discovery-research-and-innovation-in-health-and-healthcare/">my
current RWJF grant that funds 40% of my time</a> (<b>ending March
2019</b>) currently has budget allotted to fund a small contract
with Open Humans to facilitate development of particular web tools
or user interfaces (still TBD on whether that will take place,
depending on the needs and timeline of the project work).
</p>
<hr>
</div>
<div class="col-xs-12 anchor-offset" id="embriette-hyde">
<h3>Embriette Hyde</h3>
<img src="/images/2018-community-candidates/embriette-hyde.png"
style="float:right;width:250px;padding-left:25px;padding-bottom:25px;max-width:45%;">
<h4>Public statement</h4>
<p>
My passion for sharing science with the public started in graduate
school, when I realized that scientists do a bad job of explaining
their work to the broader community. This is critical — public
perception of science has downstream effects on funding. A major
roadblock is a misunderstanding of the scientific process and
timeline. Citizen science projects help fill this knowledge gap by
giving people the opportunity to contribute to science and
experience it first hand. One of my most fulfilling experiences
was managing the American Gut Project, which is part of Open
Humans. Open Humans encourages people to support citizen science,
and the dataset integration it promotes is critical for making
precision medicine a reality in healthcare. My vision for Open
Humans includes establishing educational efforts such as more
regular and varied blog posts, short video blogs, and online
courses — including a hands-on course on how to interpret
scientific papers.
</p>
<h4>Links</h4>
<ul>
<li><a href="https://www.drhydenotjekyll.com/">http://www.drhydenotjekyll.com/</a></li>
<li><a href="https://twitter.com/EmbrietteHyde">https://twitter.com/EmbrietteHyde</a></li>
<li><a href="https://www.linkedin.com/in/embriettehyde/">https://www.linkedin.com/in/embriettehyde/</a></li>
</ul>
<h4>Contributions to Open Humans</h4>
<p>
One way I've contributed to Open Humans was helping facilitate the
integration of the American Gut Project dataset into the Open
Humans system by advising and guiding the American Gut team of
developers that contributed to the code, and by communicating with
the developers on the Open Humans side when necessary.
I've participated in the GET Conference and GET Labs, representing
American Gut, and I actively send people to Open Humans on a
regular basis. I've also integrated my own datasets into Open
Humans and have made them public for users.
</p>
<h4>Competing Interests Statement</h4>
<p>
I am currently employed as Scientist and Editor at January, Inc.,
a precision health startup based in Menlo Park, CA.
</p>
<hr>
</div>
<div class="col-xs-12 anchor-offset" id="james-m-turner">
<h3>James M. Turner</h3>
<img src="/images/james-m-turner.png"
style="float:right;width:250px;padding-left:25px;padding-bottom:25px;max-width:45%;">
<h4>Public statement</h4>
<p>
I have always had a passion for science, especially genetics. I
ended up in software instead, but have continued to follow the
field as an adult. I joined the Personal Genome Project in January
2011, and have been an activate participant ever since.
</p>
<p>
I organized and ran the PGP Participant's Forum. I have also
created several tools for the Open Humans API, including the
HealthKit Uploader app.
</p>
<p>
I also have a second career as a freelance writer. I have written
for publications such as the Christian Science Monitor, and have
also written 3 books on software development. I also am the
president and chairman of the board of a 501(c)3 public charity
that has raised over $250,000 for cancer research, among other
causes.
</p>
<p>
I think that I could leverage both my experience in journalism and
in fundraising to assist the board in it's duties. I would like to
see OH work to expand the number of participants with active
datasets so that the statistical power of the data would be
increased.
</p>
<h4>Links</h4>
<ul>
<li><a href="https://www.blackbear.biz">http://www.blackbear.biz</a></li>
<li><a href="https://twitter.com/blackbearnh">https://twitter.com/blackbearnh</a></li>
</ul>
<h4>Contributions to Open Humans</h4>
<p>
I started and ran the Personal Genome Participants forum before
Open Humans came to be. Later, I developed one of the first tools
which used the new Open Humans API to connect third party
applications to OH. I also developed an iPhone/iPad app that
lets participants upload their Healthkit data to Open Humans.
</p>
<h4>Competing Interests Statement</h4>
<p>
I work for IBM, and could potentially have to recuse myself from
any decisions involving business with IBM.
</p>
<hr>
</div>
<div class="col-xs-12 anchor-offset" id="katarzyna-wac">
<h3>Katarzyna Wac</h3>
<img src="/images/2018-community-candidates/katarzyna-wac.png"
style="float:right;width:250px;padding-left:25px;padding-bottom:25px;max-width:45%;">
<h4>Public statement</h4>
<p>
Katarzyna Wac is a curious Associate Professor of Computer Science
at University of Copenhagen (DK) University of Geneva (CH),
affiliated with Stanford University. Dr. Wac leads Quality of Life
Technologies lab researching how emerging sensor/actuator-based
mobile and wearable technologies can be leveraged for a
personalized assessment of the individual’s behavior and Quality of
Life (QoL), as they unfold naturally over time and in context, and
improvement of the latter. Her research appears in more than 100 to
date peer reviewed proceedings and journals in computer science,
human-computer interaction and health informatics. She is a (co)-PI
in several European, Swiss and Stanford Medicine projects. The
vision for Open Humans is to enable individual’s short-term
behavior and long-term QoL assessment and improvement based on the
crowdsourced efforts of the donors, social and behavioral, as well
as data scientists and practitioners leveraging the results for
better QoL-enabling services.
</p>
<h4>Links</h4>
<ul>
<li><a href="https://www.qol.unige.ch">www.qol.unige.ch</a></li>
<li>Google Scholar <a href="http://j.mp/GoogleScholar_Wac">http://j.mp/GoogleScholar_Wac</a></li>
<li>Youtube <a href="https://www.youtube.com/channel/UCohpE4xXEDXLc0T_lIcl-7g">https://www.youtube.com/channel/UCohpE4xXEDXLc0T_lIcl-7g</a></li>
<li>LinkedIn <a href="https://www.linkedin.com/in/katarzynawac">https://www.linkedin.com/in/katarzynawac</a></li>
<li>Twitter <a href="https://twitter.com/katewac">https://twitter.com/katewac</a></li>
</ul>
<h4>Contributions to Open Humans</h4>
<p>
I have not yet contributed to Open Humans. At this particular
moment we are setting with my lab members a project to be announced
at the OH platform.
</p>
<h4>Competing Interests Statement</h4>
<p>
None.
</p>
<hr>
</div>
<div class="col-xs-12 anchor-offset" id="richard-sprague">
<h3>Richard Sprague</h3>
<img src="/images/2018-community-candidates/richard-sprague.jpg"
style="float:right;width:250px;padding-left:25px;padding-bottom:25px;max-width:45%;">
<h4>Public statement</h4>
<p>
For decades, I’ve managed consumer-focused software products at
places like Apple, Microsoft, and numerous startups because I
believe technology is a great equalizer, transforming society by
putting powerful computing tools within the reach of everyone. An
early and active fan of OpenHumans, I think science too can be
transformed if we make personal health and self-tracking data
openly accessible to all curious people.
</p>
<p>
Like most OpenHumans users, my background is outside the world of
professional science or academia. As a former product developer,
big company exec, and entrepreneur, I want OpenHumans to appeal to
all ranges of expertise, in every part of the world, because the
ability to do science shouldn’t depend on your background or your
current skill level. To do this, I’d like to help OpenHumans
(1) improve its visibility through world-class marketing and
promotion, (2) expand internationally and (3) remain the best
place for sharing, exploring, and analyzing humans.
</p>
<h4>Links</h4>
<ul>
<li><a href="https://www.linkedin.com/in/sprague">https://www.linkedin.com/in/sprague</a></li>
<li><a href="https://twitter.com/sprague">https://twitter.com/sprague</a></li>
<li><a href="http://richardsprague.com/microbiome/">http://richardsprague.com/microbiome/</a></li>
</ul>
<h4>Contributions to Open Humans</h4>
<p>
As one of the first OpenHumans users, I’ve shared my data from
uBiome, Healthkit, Runkeeper, Gencove and others. I also had the
privilege (and excitement!) to participate in at least one project
(by a Swiss researcher who wanted to use my microbiome data for a
study).
</p>
<p>
I'm also just a sincere fan of the work OpenHumans does, so I
regularly tweet/retweet new developments, encourage my friends to
sign up, and speak about the organization whenever I have the
chance at QS forums, biohacking meetups and other places with
friendly people.
</p>
<h4>Competing Interests Statement</h4>
<p>
None. I am currently US CEO of a China-based company,
http://airdoc.com that uses hospital-collected data to build deep
learning AI models. I would love to use my relationships with Asia
to help OpenHumans expand, but I'm not involved with anything
directly or indirectly competitive.
</p>
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