Skip to content
Janice Cruz edited this page Sep 25, 2024 · 3 revisions

PPI (Participant Provided Information)

PPI is a coding system for questionnaires and self-completed surveys, that is provided by the All of Us Research Program.

Sources

All PPI concepts and hierarchical relationships are obtained from the All of Us PPI Codebook and its electronic successors. There are two versions of representation in the OMOP vocabulary where in the older version previously created surveys have precoordinated question-answer pairs and in the newer version, questions and answer were represented separately and answers can be reused within one survey (as in there is only one "yes" answer per survey).

Source structure

PPI Questionnaires structure consists of Modules, Topics, Questions and Answers.

PPI source type value Description
Module A superior PPI entity representing a thematic set of topics, questions, and answers.
Currently, the following Modules are available:
1) Consent PII
2) Refresher Consent
3) EHR Consent PII
4) Family History
5) Personal Medical History
6) Healthcare Access & Utilization
7) Lifestyle
8) Overall Health
9) The Basics
10) PMI
11) GROR Survey
12) Primary Consent Update
13) Sharing Your Electronic Health Records
14)COVID-19 Participant Experience (COPE) > from here on new model
15) Mental Health and Well-Being Module
16) Summer 2021 Minute Survey on COVID-19 Vaccines
17) Fall 2021 Minute Survey on COVID-19 Vaccines
18) Behavioral Health and Personality
19) Emotional Health History and Well-Being
Topic A semantic module section containing a thematic set of questions or answers
Question A multiple-choice or open-ended question requesting information
Answer An answer representing a defined statement or free text

Concept Names

PPI source names are represented in a “display” field. However, to avoid concept name duplicates, modified PPI names have been made through the parsing of their source codes (values of a “pmi_code” field). Original “display” values were put into the CONCEPT_SYNONYM table.

Standard concept

If a PPI concept has a standard LOINC or SNOMED equivalent, it is considered to be Non-standard. If a PPI concept does not have a standard LOINC or SNOMED equivalent, it is considered to be Standard. However, these concepts are meant to be used in the All of Us context and standard concepts in PPI should normally not be used as target concepts in ETL steps for other OMOP CDM implementations.

Domains and Concept Classes

PPI source type value Concept Class Domain
Module Module Observation
Topic Topic Observation
Question Question Observation
Answer Answer Observation
Protocol modification PPI Modifier Observation
Physical measurement Clinical Observation Measurement

Concept Relationships

Internal PPI relationships

Relationship From To Reverse Relationship
PPI parent code of PPI Module - Respective PPI Topic

- Respective PPI Question

- Respective PPI Answer

Has PPI parent code
PPI Topic - Respective PPI Topic

- Respective PPI Question

- Respective PPI Answer

PPI Question - Respective PPI Topic

- Respective PPI Question

- Respective PPI Answer

PPI Answer - Respective PPI Question OR Topic
Answer of (PPI) PPI Answer - Respective Standard PPI Question Has answer (PPI)
Maps to PPI Module The same PPI Module as a Standard concept Mapped from
PPI Topic The same PPI Topic as a Standard concept
PPI Question The same PPI Question as a Standard concept
PPI Modifier The same PPI Modifier as a Standard concept
PPI Clinical Observation The same PPI Clinical Observation as a

Standard concept

Maps to (obligatory with “Maps to value”) PPI Answer Standard PPI Question or Topic Mapped from
Is a PPI Topic - Parental Standard PPI Module

- Parental Standard PPI Topic

- Parental Standard PPI Question

Subsumes
PPI Question - Parental Standard PPI Module

- Parental Standard PPI Topic

- Parental Standard PPI Question

External PPI relationships

A purpose of External PPI relationships is the following:

  • to build PPI-LOINC-SNOMED hierarchical crosswalks based on the Internal PPI Hierarchy.
  • to simplify s cross-analysis of patient-related information with a context of combined use of the PPI and other coding systems.
Relationship From To Reverse Relationship
Answer of (PPI) PPI Answer Standard LOINC/SNOMED equivalent of a parental Non-standard PPI Question Has answer (PPI)
Maps to PPI Question Standard LOINC/SNOMED equivalent Mapped from
PPI Clinical Observation Standard LOINC/SNOMED equivalent
Maps to (obligatory with “Maps to value”) PPI Answer Standard LOINC/SNOMED equivalent of a parental Non-standard PPI Question or Topic Mapped from
Maps to value (obligatory with “Maps to”) PPI Answer Standard LOINC/SNOMED equivalent of an Answer value Value mapped from
Is a PPI Question Standard LOINC/SNOMED equivalent of a parental PPI concept Subsumes
PPI Topic Standard LOINC/SNOMED equivalent of a parental PPI concept

Hierarchical crosswalks

The PPI Hierarchical crosswalks include only standard concepts. A PPI standard concept value depends on the existence of an equivalent mapping either to the SNOMED or LOINC. A standard SNOMED/LOINC equivalent, if present, takes the place of a non-standard PPI concept in the Internal PPI Hierarchy and adopts all its ancestors and descendants.

Mapping logic

1) Mapping of PPI Questions Note, that for the answers-containing Topics the same logic was used. Mapping of PPI Questions

2) Mapping of Answers

Mapping of PPI Answers

3) Mapping of Measurements

Mapping of PPI Measurements

Clone this wiki locally