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Michael Kallfelz edited this page Nov 2, 2021 · 3 revisions

PPI (Participant Provided Information)

PPI is a coding system for questionnaires and self-completed surveys, that is provided by the All of Us Research Program.

Sources

All PPI concepts and hierarchical relationships are obtained from the All of Us PPI Codebook and its electronic successors. There are two versions of representation in the OMOP vocabulary where in the older version previously created surveys have precoordinated question-answer pairs and in the newer version, questions and answer were represented separately and answers can be reused within one survey (as in there is only one "yes" answer per survey).

Source structure

PPI Questionnaires structure consists of Modules, Topics, Questions and Answers.

PPI source type value Description
Module A superior PPI entity representing a thematic set of topics, questions, and answers.
Currently, the following Modules are available:
1) Consent PII
2) Refresher Consent
3) EHR Consent PII
4) Family History
5) Personal Medical History
6) Healthcare Access & Utilization
7) Lifestyle
8) Overall Health
9) The Basics
10) PMI
11) GROR Survey
12) Primary Consent Update
13) Sharing Your Electronic Health Records
14)COVID-19 Participant Experience (COPE) > from here on new model
15) Mental Health and Well-Being Module
16) Summer 2021 Minute Survey on COVID-19 Vaccines
17) Fall 2021 Minute Survey on COVID-19 Vaccines
Topic A semantic module section containing a thematic set of questions or answers
Question A multiple-choice or open-ended question requesting information
Answer An answer representing a defined statement or free text

Concept Names

PPI source names are represented in a “display” field. However, to avoid concept name duplicates, modified PPI names have been made through the parsing of their source codes (values of a “pmi_code” field). Original “display” values were put into the CONCEPT_SYNONYM table.

Standard concept

If a PPI concept has a standard LOINC or SNOMED equivalent, it is considered to be Non-standard. If a PPI concept does not have a standard LOINC or SNOMED equivalent, it is considered to be Standard. However, these concepts are meant to be used in the All of Us context and standard concepts in PPI should normally not be used as target concepts in ETL steps for other OMOP CDM implementations.

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